Saturday, April 9, 2011

2+ Year Knee Update

2 years, 3 months is a long time. Think about it. Ellin had yet to smash Tiger’s Escalade with a 9-iron. LeBron hadn’t taken his talents to South Beach. Obama thought he could “change” the country. And Snookie was a term of endearment, not a pudgy reality star.

I also had 2 holes in my kneecap and a perfectly healthy leg.

Obviously, a lot has changed since then.

So let’s begin with the obvious starting point. If I could do it all over again, would I still choose ACI? I honestly don’t know. Before going under the knife, my knee didn’t hurt THAT badly. I could sense it was about to take a turn for the worst, but it wasn’t there yet. Today, my knee doesn’t hurt at all, which is a good thing, obviously. On the flip side, the lack of pain pre-surgery also meant that I never experienced the unbridled joy of having a pain-free knee, post-surgery. So when I say my knee doesn’t hurt today, I say it with a shoulder shrug, not the fist pump of a guy who just birdied 18 to win the Masters.

Unfortunately, the surgery also produced some unexpected drawbacks, completely unrelated to my knee. I went in with one problem, and woke up with a brand-new one.
The osteotomy didn’t fully heal. My tibia remains “somewhat fractured.” (By the way, somewhat fractured is an actual medical term). While the bone didn’t fuse entirely, however, enough bits and pieces did to hold the leg together. Dr. Champine described my leg as a “poor welding job.”

Now, the screws were inserted to keep the leg intact, and the surgeon had warned me the area surrounding the screws would be sensitive. At the same time, I was assured they could be removed once the tibia fully healed, meaning I spent that first year or so biding my time until the leg healed enough to remove them.

Well, I can stop waiting; the leg never healed. So the million dollar question today for me is: Has the leg healed enough for the screws to be removed?

Champine says, “probably.” He believes – and his partner, Dr. Scheinberg, concurs – that since the leg has held up for 2+ years, it’s “probably” not going to fall apart now. Of course, patients really don’t like when doctors use the word, “probably.” I like to measure risk. Can I catch VD from that Vietnamese “masseuse”? Probably, so I’m not going to ask for the happy ending. Easy decision. So even though my current choice also involves screws, this one is a bit more complicated.

Ok, quick intermission from my knee situation:

Over Spring Break, we road-tripped to Chicago to see family. My parents still live in the same house in which I grew up. After spending the week at my childhood home, I’m not sure what seemed weirder: sleeping in my old bedroom with my wife, or the lack of Michael Jordan or Paulina Porizkova posters on the wall.

By the way, did you know Illinois leads country in vanity license plates? Even minivans have them. I actually saw a guy driving a minivan with “Peters 64” plates. Advertising that you own a minivan? I thought you were supposed to be ashamed of them.

Ok, back to my knee update:

Thus far, I’ve chosen the conservative approach and opted against undergoing the surgery to remove the screws. Maintaining the status quo. By all accounts, this surgery is minor. A few days on crutches. Not a big deal in the grand scheme of knee surgeries, so I don’t fear the recovery. But I don’t want to risk the consequences if it turns out that the screws really were holding my leg together. If so, I would need some sort of bone graft to shore up my shin. And THAT’S a big f*cking deal.

To give you an idea of what’s potentially at stake here, I have no “daily living” issues. I can walk just fine. No issues with stairs. I can bike and use the elliptical machines at the gym. I avoid impact exercises – running, squatting, jumping or explosive plyometrics – but otherwise no functional restrictions. I’m plenty capable of jogging around the soccer field with the kids, even cutting without too much difficulty during scrimmages with 9-year olds. In fairness, I’m a slow, 38-year old dad playing with third graders, and these kids aren’t Brazilian. I actually weigh a bit less than I did pre-surgery, and think I might even regain my 2-pack abs by summer if I keep up my current exercise routine. Overall, I’m pretty content.

On the other hand, the screws in my shin remain sensitive. I mean, really sensitive. A little tap on my shin will drop me to my knees quicker than a hooker looking for a quick $20. Um, not that I have any idea what the going rate is for those types of things….
Until lately, the screws weren’t too big of a deal; I could tolerate them. During recent workouts, however, some of the basic leg strengthening exercises – short arc leg extensions; shuttle leg presses; even hamstring curls – have started to stress the outside of my shin. And guess what? The mere sensation that metal screws might rip through your leg like Mr. Kool Aid bursting through that brick wall is not a good feeling.

Ok, time for the Second Intermission:

Just like a strong jawline or piercing blue eyes define somebody’s face, the random shops dotting the sides of the highways provide a glimpse of state’s personality. On my Spring Break road trip, I discovered that Missouri leads the country in adult video stores and firework stands, which says a lot about the Show Me state. In fact, sometimes there were 2 adult video stores next to each other at the same rest stop -- the porn version of McDonald's and Burger King. That made me wonder -- do truck drivers comparison shop at adult video stores? Do they broadcast over their CBs, “Breaker Breaker. This is Little Bear. The Bobby’s XXX in Joplin has a wider foot fetish selection than Soft Skins.” One of the adult video stores also advertised an adjacent "men's only spa," and even used a picture of a geisha. Why not just throw up a billboard that says, "Happy Endings Available"? And, oh yeah, the local Mizzou gas station is called, Kum and Go. I'm not kidding. And you can find them next to the adult video stores.

Ok, back to the blog:

While the screws have nothing to do with my knee, I can’t truly test my knee for fear of aggravating the screws. Perhaps if the osteotomy had healed, I would have a better appreciation for how well the ACI grafts worked. But the screws prevent me from playing, for example, competitive volleyball or taking jiu-jitsu lessons, which I envisioned as the true measuring stick of a successful surgery. And that’s disappointing. Grumble, grumble.

Here are some other observations:
• My quad remains a bit weak, and I really don’t ever see it gaining full strength. Not only do the screws limit certain exercises, but the osteotomy permanently altered my mechanics, making it difficult to isolate my quad and build up the “teardrop” muscle. You can only do so many straight leg raises.

• I still have a decent amount of crepitus, but no pain associated with any of the crunching. I planned on getting my knee scoped to clean up the crunching at the same time the screws were removed, but obviously that never happened.

• Every so often I experience a twinge of weakness on the inside of my knee. It’s more like a pinch, something that creates the sensation that my knee might give out. But the knee doesn’t. I’m not sure if there’s something slightly defective with my knee, or whether that’s caused by my lack of inner/outer thigh and hip strength.

So here’s where I am 2 years, 3 months after ACI. Part of me wants to tough it out by keeping the screws. I try to convince myself removing the screws just isn’t worth risking a bone graft and the attendant lengthy recovery. But man, my screws can be aggravated as easily as a sleep deprived new parent, and I wonder how much “quality of life” can be gained if they were taken out. I still haven’t made a decision, and probably won’t until my kids’ soccer seasons end next month.

Until then, I’d love to hear from others about their knee experiences, along with updates from other ACI patients who follow my blog. In addition, I welcome any ideas or suggestions on blog topics from my “readers.”

17 comments:

Lynn and Matt said...

Jim-

It's good to hear from you and get the update! It sounds like life is good and your knee woes aren't slowing you down anymore. I am glad your tibia is holding up--I vote for no more surgery unless you have to!

You know, I got my ACL tibia screw taken out during an arthroscopy for excision of scar tissue last April; then ended up with a raging infection and three more I&D surgeries (and the remainder of my hardware taken out!). It was crazy-six knee surgeries in 2009-2010 (while in graduate school) was not fun!

However, it has been interesting and I have learned a lot about healthcare, physicians, insurance, hospitals, home health and rehab. It is a different perspective than I get at work. I know this experience has changed me as a healthcare provider.

None the less, my knee feels good most days and I am able to cycle, swim, walk and work. I am looking forward to my next challenge--pregnancy! I'm only 11 weeks now but I am interested to see how my body will handle the extra weight and I'm hoping that I'll be able to chase my little one around for years to come!

Thanks for keeping in touch.
Sincerely, Lynn

Jim said...

Congrats, Lynn!! I look forward to welcoming you to the parent club.

I had no idea you had some many complications from earlier surgeries. 6 knee surgeries in one year might gain you entry into the Guiness Book of World Records.

Not sure what I'm going to do. I'm concerned the screws might get worse over time. They definitely seem more sensitive now than they used to be.

Stay in touch,
Jim

JenGreen said...

I had ACI in December 2005, had the screws removed, can run & jump, etc. The only thing I can't do is kneel. I tried to go back to yoga a few months ago, and it usually took the entire class for my knee to numb down enough for me to kneel on it. And even then, it's excruciating to kneel on just that knee. Do you have the same issue?

JenGreen said...

Meant to add, wish I had had your blog before I went through the procedure! I had an osteotomy also, although it healed well for me, but my recovery was a lot like your's. Good luck with the knee!

Jim said...

I wish I could take out the screws, but then I run the risk of my tibia falling apart and requiring a bone graft, which I want to avoid, at least for now. I think the screws limit certain activities, and seriously consider saying, "screw it, and get them yanked." (pun intended). Kneeling is "awkward," largely because my patella was shifted downward a bit. Plus, sometimes the screws rub against the ground when I kneel, which hurts. Glad you're able to run/jump. I can jog when needed -- like when I play ball with the kids -- but generally avoid doing more than needed as a precaution.

Lisa said...

Hi Jim, Came across your blog while doing the inevitable googling after hearing from my OS post arthroscopy -"... will need another surg... with a graft... your cartilage is grade IV". Not sure exactly what this means for me, or if I need/should do it - but it does suck not to be able to hike or even go up and down stairs without effort and concern for falling! Anyway - you should write a book - love & appreciate your humor! Lisa

Jim said...

Hey Lisa. Nice to "meet" you. Sorry to hear about your knee issues. Really sucks to struggle to move around. Not sure how much you've already researched about your knee options, but there are already "improved" ACI techniques, like MACI and DeNovo. I know absolutely nothing about either procedure; just passing along the names. My main suggestion -- get multiple opinions on the condition of your knee; see if non-ACI options are available; and if you need the surgery, go to one of the established guys. Hope my blog helps. Keep me posted, and stay in touch.

KSC said...

Hi Jim,

I just ran across your blog tonight at 3:35 am. Why in the hell am I still up... On June 17th, 2011 I had a meniscal transplant, HTO, and ACI! This friday is 5 week after the big day. I start outpatient therapy in two weeks. How fast did you get to "walking" again, did you ever use a pool for therapy, and am I completely out of my mind that I'll be back teaching Pre-k in August? Any tips would be greatly appreciated!!!

Thanks
Kristen

Jim said...

Hi Kristen. Sounds like June 17 was a busy day for you. Because my tibia healed slowly (and never fully healed, as it turned out), I was non-weight and partial weight bearing for a long time. I seem to recall being on crutches for 2-3months, and not really walking comfortably for many more months. I hate to say it, but teaching pre-K 2 months after your procedure might be a bit ambitious. I'd be scared some little kid cracks you accidentally, or you trip over somebody, or even just all the constant movement and bending over. I've pretty much blocked out those first, few painful months. But I was pretty good about posting regularly back then. Check out my early entries for more insigth. Keep in touch.

Jen W. said...

Hey Jim, it's been a long while since I stopped by your blog. My patellar ACI is now 2.5 years old, with a lateral release. Thankful I didn't need the osteotomy!
Last year snowboarding was a bust; 14 months post surgery was much too soon and I didn't brave it again this winter. Just this summer I've started road cycling again. I'll never get back to my pre-surgical distances of centuries and double centuries, but I can comfortably do about 30-40 miles nowadays. I hike often, teach and practice yoga, and work out nearly every day. As a massage therapist, I stand 6+ hours a day. It was only last week that I pushed it too much, and it was an accumulation of activities that would be considered "pushing it". So I'm back on NSAIDS and hoping the minor stiffness and swelling will depart without incident. Oh, and I no longer have health insurance so I REALLY hope the knee has no further crankiness.

Overall, I guess I'm glad I did the ACI. It was a ridiculously long rehab, one I didn't feel I was well prepared for. I am still dealing with quad/glute/calf imbalances. My OS wanted to scope my knee to clean up the scar tissue last year, and I said hell no! I worked with a massage therapist colleague and he manually broke up the scar tissue. It was painful but effective. There was no way in hell I was having another surgery.

There's my update!
Be well,
Jen

Jim said...

Jen -- Good to hear things are going reasonably well. I still see "progress" with my knee. Even though the science behind the ACI suggests the cartilage continues to harden over time, I tend to think these minor improvements result more from mental gains, not physical ones. You?

I just returned from a week in Colorado. Not surprisingl, 60-degree weather is much better than 100+ in Dallas. Anyway, the family did a fair amount of hiking and walking around the mountains. No problems whatsoever. However, when the mountain rains arrived, the screws in my leg twitched. I could also sense the metal getting "cold." Not a good feeling. At some point, I'm pretty sure I'm going to have to bite the bullet and get them removed, even at the risk of potentially needing a bone graft if the leg can't survive without them. I can't imagine still having the screws in my leg in 20-30 years, chasing around my grandkids. We'll see.

Stay in touch.
Jim

Wangta said...

Jim - I also had ACI done almost 2.5 years ago (Sept 2008 to be exact). Did we talk? I remember I was emailing back and forth with somebody, but I'm not sure it was you.

Anyway, I read your blog and found your experience eerily familiar to mine. I've been trying like hell, but I cannot for the life of me, get my inner quad muscle to the same strength/size as pre-surgery (the teardrop muscle). My left one is considerably bigger than my right (ACI'd). For awhile, my legs were feeling great, but recently I've had good days and bad days - and often have wondered if I should of had the surgery or not. Like you, my knee wasn't in terrible pain before, and I can honestly say I was much more athletic then vs now - not sure if all of that is attributable to the knee or age, etc. On good days, I think - yeah, it was worth it - my knee feels ok. On bad days, obviously the opposite.

I still have my screws in and honestly have never really thought of removing them. Besides the 12-16 months post surgery when I started more grueling PT, I don't really feel them and they don't seem to restrict any movements. I can run and jump off the foot (basketball) ok - the bigger problem I have is with my head - my brain still doesn't seem to trust that normal movement will not produce pain. This results in me being reluctant/hesitant to make certain movements on my knee - like running to pickup a loose basketball and ending the knee to reach down.

About a year post-surgery, I had a long conversation with my doctors (Dr. Minas and Gomoll in Boston) about removing the screws - they didn't really see as necessary. Supposedly bones fuse very well to the metal (titanium?), and they didn't feel like it would hinder any of my movements.

Jim said...

Hey Wangta -- Yeah, I think we swapped emails or blog posts awhile back. Sorry you're stuck in no-man's land with the knee. I'm actually ok with the knee; it's my shin that bothers me. Usually, the screws can remain in or get removed without complications. But my incomplete bone healing mucks things up. I'm in the definite minority here.

The mental challenge is pretty tough. The cartilage might continue to heal, but any future "hardening," I think, will be pretty minimal. The only thing you can do is push it as far as you can each time, until you reach a point where either the knee hurts or you bust through the mental block. Easy to say; harder to do.

I see continued minimal improvement, but I think the improvement really stems from overcoming those minor mental blocks and pushing things a bit further.

Good luck.

Jbp said...

Hi Jim, I just ran across your blog and was wondering how you are doing. I am currently awaiting approval from the insurance company for ACI and TTO for my left knee. I had the biopsy in December. I had an osteotomy on my right knee about 15 years ago and had the same issues with the screws. I had no issues with the healing and had the screws taken out a few years after the initial surgery. I still have some sensitivity, but overall it feels great. Just curious how you were doing.

Jamey

Jim said...

Hi Jamey. The knee is doing fine. It never returned to "normal," but I don't have any pain or limitations. The screws are still in, and I haven't been able to remove them because the tibia never fully healed. As I mentioned in my blog posts, the doctor thinks I can "probably" remove them, but no guarantees. I think I'll eventually have them taken out, but man, I worry that removing them will require a bone graft, which is a major ordeal.

Who's your surgeon? Good luck, and keep me posted.

Jbp said...

Hi Jim,
Thank you for responding. Out of curiousity, how long did it take to get insurance approval. I noticed on of your lesions was on the patella, which is where mine is. I was told after the scope and biopsy that it is about 2 cm long. Also, do you think it is really unrealistic to be back at work after a week? That is what the doctor told me and I am not really finacially able to go on FMLA. Thanks again for your feedback, I have a lot of question that keep coming up the more I think and freak out about this surgery. I need to stop reading other people's blogs and discussions!!

Jamey

Jim said...

Hey Jamey. The doctor's office handled the insurance approval. I don't recall how long it took. 1 week is pretty ambitious. It took me several weeks before I felt comfortable moving around. Getting in/out of cars, up and down stairs on crutches, and just generally remaining at the office would be tough right away. Plus, I couldn't drive (right knee) for 3 months, I think. I worked from home for several weeks. Good luck.